Local In Person Support Groups

Connect and learn with others on the same journey in your community.

Support groups are a safe space to share and ask for help.

Support group facilitators lead monthly discussion groups in their communities. These groups are composed of patients, as well as their families and friends, who share the same disease diagnosis. The facilitator is responsible for welcoming members, distributing educational materials, encouraging participants to share information, keeping the group on topic, and providing a safe, supportive, and open environment for participants.

CANADA

Ontario PSP/MSA/CBD Support Group patients and caregivers

Location: Port Nelson United Church, 3132 South Drive, Burlington ON

Meeting Time: Last Monday of every month 1-3pm (Excluding December)

Facilitator: January Bailey Will, EMAIL

By: CCF for PSP Awareness

Montreal Facebook Group for PSP/MSA/CBD/LBD patients and caregivers

Location: Click Here

Associated Medical Center: Centre Hospitalier de L’Université de Montreal

By: CurePSP

Calgary Support Group for PSP/CBD/MSA caregivers

Location: Meeting virtually - contact facilitator for link

Meeting Time: 3rd Saturday of every month from 12:00pm-2:00pm

Facilitator: Kelly Clapham, claphamk@telus.net, 403-803-3307

By: CurePSP

British Columbia Support Group for PSP/MSA/CBD/LBD patients and caregivers

Location: Contact facilitator for location

Associated Medical Center: University of British Columbia Hospital

Meeting Time: 4th Friday of every month from 10:00am-11:30am

Facilitator: Bob Brett, curepspbc@gmail.com, 604-930-8150

By: CurePSP

The Coleen Cunningham Foundation serves individuals and families dealing with Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA) and Corticobasal Degeneration (CBD).

Our Non Profit Foundation Board is composed of volunteers who each have a personal connection to Atypical Parkinsonism. Having experienced the frustration first hand and felt by so many families affected by Atypical Parkinsonism (difficulty getting a diagnosis, healthcare teams unfamiliar with the diseases, lack of information and support in the community) We are passionate about not wanting another family in Canada to face the same challenges. Our aim is to become a National Charity serving all Canadians affected by PSP, MSA and CBD.

No One Walks Alone!

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